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Immunologic Tests for APAS and other Reproductive Immune Disorders

In 2013 when I joined Antiphospholipid Antibody Syndrome (APASFacebook support group, it had barely a thousand members. Now, we are nearing 9,000 members. It’s is a double-edged sword because the increase means more moms are being diagnosed with APAS and other reproductive-immune disorders (RIDs).

APAS is only one out of the five different RID categories based on Dr. Alan Beer’s 2009 book, Is Your Body Baby-Friendly. The latest 2019 edition does not include the categories, but immunologists maintained them due to simplicity and ease in treatment guidance.

When my doctor warned me that I could have APAS, my world turned upside down. During that time, seven years ago, there were very few references about the condition, and I was really grappling on the next action we would take.

The best way to start is to look for a doctor that specializes in treating RIDs, more so someone who has had much success in managing the condition. It is of utmost importance to find doctors who you trust and who you are comfortable with because you will be working with them for the whole duration of your pregnancies.

A woman suspected to have RID may need to be looked after by several doctors: an obstetrician-gynecologist or perinatologist, an immunologist, and in some cases, a fertility specialist and endocrinologist. (Click here to check which doctors your need in your team.)

I was more than grateful to have found my primary physicians who took care of me during my successful pregnancies with Santiago and Lucia. They are Dr. Valerie Guinto, who is a perinatologist, and Dr. Caroline Gloria, an allergist and reproductive immunologist.

Your need to take a series of immunology tests

To confirm if you indeed have a RID, your ob-gyn or immunologist would require you to undergo some immunology tests to check in which categories your case belongs.

In the past, we have seen doctors who only test for APAS or Category 2. However, based on anecdotes that we have witnessed in the Facebook group over the past few years, it is best to get tested for all categories because treatment and medical protocols vary in each one.

The following are some of the more common immunology tests required: (Note: You need to discuss these with your doctor. This list is only a reference on what you can expect if you are suspected of having RID, and it is not meant to be a substitute to your doctor’s orders.)

Category 1: Tissue Type Compatibility

Lymphocyte Antibody Test

This test measures the level of blocking antibodies in a woman’s blood. According Dr. Beer, “inadequate response for this test can signify the inability of a woman to produce blocking antibodies, which protect the fetus from rejection.”

Tissue Crossmatch

In this test, the husband’s lymphocytes are mixed with the serum of the wife. If the results come out negative, it means that the wife may not be able to produce the blocking antibodies needed to protect her pregnancy.

Category 2: Blood Clotting Defects

Dilute Russell Viper Venom Time or DRVVT, Silica Clotting Time or SCT, and Kaolin Clotting Time or KCT

These are different tests to measure blood coagulation or the presence of lupus antibodies. These tests measure the length of time it takes for the blood to clot. Problems in blood clotting can cause miscarriages, preeclampsia, preterm labor, among others.

Antiphospholipid antibody tests

These tests measure the presence of antibodies to phospholipid molecules that are critical for the implantation and growth of the embryo. When these antibodies are present, they disrupt cell function and can cause pregnancies to fail early.

Category 3: Immunity to Pregnancy and Antibodies to the DNA

Antinuclear antibody test

It’s also a blood test where the woman is checked for antinuclear antibodies. If she has positive results, she may be suffering from an immune imbalance. According to Dr. Beer, this test is often weakly positive in women experiencing infertility or recurrent pregnancy losses. The presence of these antibodies can cause inflammation in the placenta and can lead to implantation failure or pregnancy loss.

Category 4: Antibodies to sperm

Anti-sperm antibody test

This test measures if the man or the woman is producing antibodies to the sperm, which can hinder conception. According to Dr. Beer, both men and women can have anti-sperm antibodies. The presence of these antibodies results in the inability to conceive normally.

Category 5: Natural Killer Cells and Antibodies to Hormones and Neurotransmitters

T/B/NK cell enumeration test, NK cell cytotoxicity test, Anti-thyroid antibody tests

These different tests measure certain antibody levels produced by the woman. According to Dr. Beer, any variation above normal levels can predict future pregnancy loss.

Not all hospitals or laboratories offer all these tests. It would be best to consult with your doctor on which laboratories or hospitals to go to so that they can guide you properly and manage your expenses. They’re all specialized tests, so prepare to spend. Some patients would require more confirmatory tests based on these initial results.

Author’s note: This article first appeared in Smart Parenting last March 15, 2020. View my other articles here>>

Dr. Guinto answers questions about APAS

This transcript is found in my book, Lost but Found as an appendix. My doctors, Dr. Valerie Guinto and Dr. Carol Gloria, have been most gracious in sharing their expertise about APAS and RID/RIF.

Hope you can support my book and share with women who may be suffering from recurrent pregnancy losses. You can get my book here. 

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In this interview, my obstetrician and perinatologist, Dr. Valerie Tiempo Guinto sheds light on APAS/APS. 

Dr. Valerie Tiempo Guinto is the Chief of Maternal-Fetal Medicine Section at the University of the Philippines-Philippine General Hospital. She was also the President of Philippine Society of Maternal Fetal Medicine in 2017 and is the Head on the Task Force on Recurrent Pregnancy Loss of the Philippine Obstetrical and Gynecological Society.

  1. What is APAS? 

Antiphospholipid antibody syndrome or APAS or APS is an acquired condition wherein the individual’s immune system harmfully reacts to the individual’s own body or self, manifesting clinically as increased clotting in the veins and in the arteries and/or pregnancy loss. The clots may break and get thrown to the circulation and affect major organ systems such as the brain, the kidneys, and the lungs. In pregnancy, it can cause repeated miscarriages or stillbirth.

  1. How prevalent is APAS in the Philippines? 

We do not know the exact number for this in the Philippines, although in my practice as a maternal-fetal medicine specialist/perinatologist, I see many mothers afflicted by this condition. According to international studies, it can affect up to twenty percent to forty percent of women who had at least two miscarriages.

  1. How is a person diagnosed with APAS? 

The diagnosis of APAS rests on documentation of the presence of two criteria: clinical and laboratory. For the clinical criteria, there should be at least one episode of a thromboembolic disorder (increased clotting and clots thrown in the circulation causing damage to organ systems) and/or problems in previous pregnancies, such as severe preeclampsia causing premature delivery of a baby, growth restricted babies, stillbirth, or repeated miscarriage. For the laboratory criteria, at least one of the prescribed laboratory tests should be positive.

  1. What are the symptoms of APAS?

People who have APAS have problems with increased clotting, which may manifest as stroke (usually before forty years old) if it’s the brain that was involved.  There may also be problems with the lungs and other organs like the kidneys, after they are subjected to conditions that would further increase clotting such as immobility, long hours of air travel, and the presence of a chronic disease or pregnancy. In pregnancy, the pregnant woman may develop preeclampsia or hypertension in pregnancy early or before the eighth month of pregnancy, repeated miscarriage, stillbirth, or growth restriction. The association of APAS with infertility, however, is still controversial.

  1. How is APAS treated? 

Thorough evaluation of the medical condition is done prior to pregnancy and involved organ systems are treated first before trying for pregnancy. While trying for pregnancy, low dose aspirin is started. Once pregnant, further anticoagulant treatment is given. In some cases, some other immunologic treatment administered by reproductive immunologists is given to further control the condition. In the baby, the pregnancy is closely monitored by fetal surveillance techniques done by maternal-fetal medicine specialists/perinatologists to see complications as they develop. These are addressed accordingly. The pregnancy is pushed to term or as close to term as possible to improve the outcome of the pregnancy. Delivery may be through vaginal or caesarean section depending on the mother’s and the baby’s conditions.

  1. Who manages an APAS pregnancy? 

APAS is a condition needing multi-specialty care. The maternal-fetal medicine specialists/perinatologists are trained to work-up before and after conception and manage women and their babies with this condition from before conception to after delivery. Maternal-fetal medicine specialists/perinatologists went through five years of medical training, four years of residency in obstetrics and gynecology, two years of subspecialty training in maternal-fetal medicine and have passed rigid examinations (written, oral, and practical examinations) to qualify as subspecialists in the practice of high-risk pregnancies. They work closely with the reproductive immunologists who administer the immunologic treatment and help control the condition in the mother.  Other specialties involved are rheumatologists (when there are connective tissue diseases such as systemic lupus erythematous), geneticists, reproductive medicine/infertility specialists (when there is infertility), other specialties in internal medicine, nutritionists, and other allied medical professionals.

Hope this helps, loves! Dr. Guinto holds clinic at Asian Hospital, St. Lukes BGC, and in Joshua Clinic near PGH. Join the APAS and RID Facebook Support Group to check her latest clinic schedule.

The Story of the Tulip

“A tulip doesn’t strive to impress anyone. It doesn’t struggle to be different than a rose. It doesn’t have to. It is different. And there’s room in the garden for every flower.” -Marianne Williamson

A month before my target launch for the book, I still did not have a cover. I only had one idea in mind – it would be a simple cover with plain text – like Malcolm Gladwell’s books.

A good friend of mine, Regie, who has always been supportive with my passion projects and who has blessed me tremendously with his craft, sent me a study for the cover of the book.

When I received the artwork in my e-mail, I was dumbfounded.

This was it. I didn’t know what this fully meant, but I knew in my heart that this was the cover of my book. 

Despite its simplicity, the artwork had so many facets in it. The tulip (its meaning I will share in a while), the crosses that are in the text and the fading leaf. I did not give any directions to Regie but somehow, it encapsulated the soul of this book.

Antiphospholipid Antibody Disorder or APAS

THE TULIP

When I researched about the symbolism of this flower, this is what I found. It resonated with me so much that it moved me to tears. It was just the perfect flower for my cover.

  • Perfect, enduring love between partners or family members
    • The love I have for my family is unconditional and knows no bounds. 
  • Undying passionate love, whether the passion is spurned or returned
    • The love I have for my angel babies would never die
  • Abundance, prosperity, and indulgence
    • The journey to acknowledging the abundance the Universe has to offer was introduced to me this year and it could not have been more timely
  • Charity and supporting the less fortunate
    • The book was intended to support my dream to build an APAS Foundation

It was later on that I realised that this flower plays a significant role in my life – why? Because it was my wedding flower!!! How could I forget??! The synchronicity of it all was just amazing.

THE CROSSES

There are apparent crosses – the small one and the big one – both representing my two little Bastis whom I have lost. The journey to losing them has been painful but sometimes, our biggest crosses bring out the light that we can share to the world. I love the quote, “Turn your pain into purpose,” and this is what this journey has taught me – with the cross not only being a symbol of sacrifice, but of redemption.

THE FADING LEAF

Life is fleeting. In an instant, we can lose the things or people most important to us. That is the reason why we have to live mindfully. To share to the world what we have as much as we can, for as long as we can. Let us make a little space of heaven on this earth, especially to grieving mothers and women wanting to hold a little baby in their arms.

I have prayed for the cover of this book, and like many of my prayers, this has been answered. What I believe in now is a testament of this promise –

Ask and it shall be given to you. – Matthew 7:7 NIV

I pray the same for you.

P.S. You can buy the book here. Thank you for supporting this passion project.

Love,

Small Habits that Helped with my Antiphospholipid Antibody Syndrome (APAS) Pregnancies

Knowing you have Antiphospholipid Antibody Syndrome (APAS) can be devastating. For women who are recently diagnosed, it could be nerve-racking. Many are confused on how they are suffering from this condition and what could have caused it.

For so many years, I have been thinking how do we acquire this disease disorder (because yes, it is acquired). In one survey I did in the past, there were really no significant co-relation with how people get it – some were healthy-eaters, some were not; some smoked, most did not; it really is mind-boggling (maybe I should launch another survey soon!)

But upon consulting with my doctors, these were the small things that (I think) helped me a lot in managing my disorder and I am sharing them with you in the hopes that you might benefit from them, too.

Move.

Ahhhh… movement. Exercise. Walking. Whatever. More and more women are stuck in the office, crouched in front of their computers from morning til night, not seeing the sun. I know of a lot of people who are Vitamin D-deficient (me included!) and it is because we are cooped up in our offices the whole time.

Our bodies are meant to move. Of course, these are the things that I know just now as I take a conscious effort in taking charge of my health. But I think our sedentary lifestyle is really one of the causes of APAS. This is just my theory but hear me out — why are there more and more people diagnosed with the condition – the condition after all is related to blood and circulation. There are already some studies that link extended periods of sitting to developing clots – find them here and sedentary lifestyle as one of the leading factors in cardiovascular diseases – link here. Maybe we have this blood clotting problem because of this, we don’t know!

I lived in my office cubicle for so long. I looooved my job – I was the Corporate Junkie, after all. And I hated exercise. But at the time when I was overhauling my lifestyle to get pregnant, I jogged every day. It wasn’t much but it was one step better than nothing. To date, this is still a work in progress on my part.

You are what you eat.

 

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I am the world’s unhealthiest eater. I moved to Manila in 2005 and I was alone, trying to climb the corporate ladder. I didn’t have relatives here and lived with friends who were also busy climbing their own corporate ladders. Because of this ‘isolation,’ I picked up bad habits easily. I relied on fast food because I didn’t really cook (and cooking only for yourself without anyone to share it with is just sad). I lived on soda, burgers, canned goods and pancit canton.

I was reading Bo Sanchez’ Awaken the Healer in You just the other day and that was when I realised that my disorder could have been brought about a lot because of the way I ‘took care’ of my body. You are what you eat, after all.

When I visited Dr. Regina, a Traditional Chinese Medicine (TCM) doctor, one of the first things she told me was to eat healthy: drink warm water everyday (avoid cold drinks if you are conceiving to keep your body warm for conception), eat green leafy vegetables (I made green shakes), avoid fast food, give up coffee and soda (totally the hardest I needed to do).

Be on deep sleep from 11pm to 3am.

I claimed I was insomniac. Maybe I was. Maybe not. Maybe I just wanted to sleep late for the fear of missing out. Our world today lacks sleep. One proof of this is the bestseller oil in my shop is actually something that aids people to have a more restful sleep! There are so many distractions – 24/7 Facebook and Instagram, Netflix, Mobile Legends, CoC, you get the drift!

Dr. Regina told me that for a woman to be able to have a baby-ready body, we need to sleep and allow our body to rest and repair itself. What does this mean? That we have to sleep from 11pm to 3am because this is the time when the body is supposedly doing its optimal job in bringing our body back to homeostasis. Today, I found this to be true. Sleep is the most important thing in my life and I feel better each time I am able to get those much needed hours of snooze.

Go out in the sun!

I already mentioned this above – we are like vampires hating the sun.

A lot of us are Vitamin D-deficient because we are indoors most of the time. There have been recent studies showing promising data that Vitamin D helps with fertility, both in men and women. So before popping that pill (which is the most convenient way on how we do it now), do it cheaper and more naturally.

Go out and bask in the early sun. Recharge your body with its warmth – things we learn in kindergarten 🙂

Drink your water.

Ahhh. I was a cactus. Seriously. I lived on coffee and soda and while yes, they have water, they were unhealthy.

Our blood needs pure water to efficiently carry out its tasks. The body needs to be well-hydrated to carry out its functions. Dehydration causes high blood pressure in diabetic patients, can cause mitral valve prolapse and thromboembolism and so on. These are all related to the circulatory system. APAS is related to our blood quality and when I think about it, I am really the best candidate for the condition because I hated water so much. Sigh. The small things we take for granted.

So yes, again, things we learn in kindergarten. Drink those eight glasses every day (note to self, haha).

Be still.

 

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Everything starts from the inside.

I dabbled into meditation back in 2013 when I was trying to conceive because I suffered from a lot of panic and anxiety attacks. I had panic attacks when my period was about to come and of course, I had anxiety attacks when they finally came. Funny (but not so funny actually during that time) thing is, I had attacks when my period came and I had attacks when my period was delayed, thinking – what if my body was already killing my baby without me knowing it again? It was a crazy time.

I don’t know where I read it or who introduced it to me but the practice just came to me somehow. I downloaded the app Omvana and meditated (it was really more of listening to the meditations in the app) each time I needed it and it really curbed those moments when I was really going crazy.

Now, it has been a daily conscious practice and it has always, always grounded me in love, serenity, and with the knowledge that I am where I should be.

And pray.

 

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In prayer, we ask. In meditation, we listen. And I couldn’t agree more.

Prayer has given me comfort at the time when everything was on a cliffhanger. Especially when you are battling with this oh-so-unpredictable disorder, prayer should always be your armour of strength. There are many cases when we have done everything that we could to have a successful pregnancy but still, we lose our babies. And while this could be devastating, this only proves one thing – it is really not in our hands.

My husband and I lived by this: we would do everything we can in our power (go with the treatments, etc.) and then let God to the rest. Because really, at the end of the day, there are no assurances. There are no guarantees. But there is always hope that whatever will happen will happen in its own time and reason.


I hope this list somehow helps you with your journey. While I linked to medical studies, these are just my own theories based on the research that I do and from my own experiences. Nothing that I mentioned here is rocket-science – mostly just the basic tenets we have learned when we were younger but something we have totally taken for granted.

Let me know what you think and please feel free to share your good habits, too, to help others! 🙂

Love,

My Body is not Baby-Friendly

This article was edited and published at Smart Parenting PH.

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 “Your body is killing your baby.”

 These are probably the last words you would want to hear in your lifetime.

For someone who is dreaming to become a mother, it brings unimaginable pain to be told that you are the reason why you are not carrying your pregnancy to term. How ironic is it to want to become a mother and yet, your own body decides to do otherwise.

I am now a mother of two wonderful rainbow babies, Santi and Lucia, but before I was able to hold them, I had been through hell and back.

My motherhood journey started in 2012, right after my wedding. I was 28 years old then. My husband and I have been together for six years before we tied the knot.

We got a positive pregnancy test in my fifth week. We were ecstatic to be first-time parents and we sought out an obstetrician to confirm my test. I had an ultrasound but we were told that we have to wait for another week because there was no heartbeat yet.

“Masyado pang maaga.” That was what the doctor said.

Twenty four hours after, I bled. I did not know what was happening. I thought I was bleeding because of the procedure I went through earlier. Little did I know that I was already going through a miscarriage.

That was the first time I lost a baby. That was also the time that I experienced the deepest kind of grief I have ever felt in my whole life.

When people around me knew about my miscarriage, many were sympathetic. Some were just cruel.

“Ingatan mo kasi.” Someone told me this at work. While I wanted to scream at his face, I just did not have the energy to retaliate. LikeTeflon, I just comments like this slide by me. There are just many insensitive people in this world. Nothing I could do about that.

My heart bled. A lot of women apparently miscarry. But not a lot would talk about it.

In my case, I suffered in silence, shutting out the people who were trying to reach out. I didn’t think that anyone understood what I was feeling at that time. Yes, it might have been too early. Yes, we did not have a heartbeat so technically, my baby was not “alive” yet. For me, however, that moment when I saw two red lines from that pregnancy test, I was already a mother. When I lost that pregnancy, I just did not lose a child. I lost all the dreams that came with it and it was utterly heartbreaking.

The months after my miscarriage just went downward spiral.

My relationship with my husband was strained. We both did not know how to deal with the loss. I hated him for acting so nonchalantly about my miscarriage. He hated me for the “monster” that I became.

I was not clinically diagnosed with postpartum depression but I think that was what happened to me. I had a hard time coping with my loss so I poured all my energy at work. At least that was one area I could control.

When I lost my first baby, I also lost my husband. When I miscarried, I also lost my marriage.

It took several months before my husband and I reconciled and tried to fix our marriage again. Shortly after we got back together, I got pregnant again.

My husband doted on me and gave me everything that I asked from him.  We just transferred to our new house and we were excited to start anew. This was it, I told myself. I was finally going to be a mother.

That happiness was short-lived.

On my 11th week, I had spotting. I told myself that it was just implantation bleeding and that there was no need to worry. Our baby had a strong heartbeat a week ago during my checkup and there was no reason to panic. I rushed myself to the hospital and I was sent for another ultrasound.

The doctor was eerily quiet when she was looking at the ultrasound screen. She called another sonologist to confirm her findings.

I already knew what was happening even before they uttered the words. Tears streamed slowly from my eyes as I felt a deep punch in the gut.

“We are sorry. We don’t have any cardiac activity.”

I wanted to vomit right there and then. Everything went hazy. I went out of that ultrasound room and looked for the nearest restroom. I slumped on the restroom floor at Makati Medical Center, not knowing what to do.

It was happening all over again. It felt like a sick movie. I wanted to punch someone.  I wanted to shout. I wanted to curse and blame God for allowing this to happen.

I called my husband, asking him to pick me up. I then called my Mama and just cried my heart out.

I lost it again.

That was all I said. The truth is there was nothing I wanted to do but to go back to Bacolod and crawl beside my mother to feel a little bit of comfort.

Ganun ba akong kasamang tao para di mabigyan ng anak? Yung iba dyan, ayaw nila ng anak. Yung iba, pinapabayaan lang anak nila sa kalye. Bakit ako ayaw akong bigyan?

 I probably blacked out after that. I did not know how I was able to go home. My next recollection was that we were already at the hospital again for my D&C procedure.

The procedure was almost the same as if you had a baby. Only there was no baby. Only the products of conception.  My baby was called products of conception. I wanted to kick someone on the face.

He had a name. His name was Basti.

When I asked my doctor what happened, she told me that I might have APAS. My mind reeled.

What the hell was APAS?!!!

This was in 2013.

When I was diagnosed with the condition, there was not much information it. I was on a wild goose chase. I found abandoned blogs and very few medical articles about it. I promised myself to research about APAS amidst my grief.

I learned that women who suffer from recurrent miscarriages (sunod-sunod na pagkalaglag ng pagbubuntis) are possible APAS patients. APAS is a common medical term the medical community use to refer to a condition where the body rejects its own baby.

But technically, APAS is only one out of five reproductive-immunological disorders or RID. RID categories are autoimmune or alloimmune disorders where one’s immune system rejects the fetus because it is being treated as a foreign object. In some cases, RID can also be a cause of unexplained infertility.

These were the things I learned when I stumbled upon a Facebook Support Group about RID. When I joined that group, I found my tribe. It was the first time that I did not feel alone anymore. There were hundreds of us going through the same challenges. I was inspired by the stories of mommies who have overcome the condition and were able to finally hold a child in their arms.

I was spiritually renewed with their stories.

I went through all the treatments for my condition and found the best doctors.  It was emotionally, physically, and financially draining but we had to do what we had to do so that we would not look back with regrets. There were many sacrifices that we had to take. I took a sabbatical from corporate life and had to turn my bad lifestyle habits around.

Despite this, we were not lucky. More than the expenses for the treatment, the psychological effect was more taxing. Waiting was painful, especially because you do not know if you are really waiting for something or not. We did all novenas, prayed to the highest heavens.

Kulang nalang sumayaw kami sa Obando.

Almost a year had passed and there was still no baby. My husband and I decided to give up on our baby project. We told ourselves that we were okay not having a baby. We have done everything humanly possible and it was enough. We started our marriage together, just the two of us – a baby is just a bonus. Maybe it was just really not meant for us.

A day after this surrender, I had a very weird encounter.

I don’t know if I was going crazy but someone (or something) whispered in my ear that I would be pregnant if we made love that night. I told this to my husband and he just laughed it out, thinking I was only making my moves. I let him believe what he believed in.

This story cannot be left out from my pregnancy journey because a month after that whisper came, I was pregnant. I knew then with all conviction that the baby I was carrying was a gift from God.

From that first moment, I knew that the baby I was carrying would be a boy. He was a testament of God’s infinite blessing in my life like all the childless women in the Bible who were later on blessed with a son Sarah had Isaac, Rebekah had Jacob and Esau, Rachel had Joseph and Benjamin, the wife of Manoah had Samson, Hannah had Samuel and Elizabeth had John.

The journey was not easy. I had to inject blood thinners on my tummy every 12 hours. I had to have monthly infusions. We only told close family and friends and never announced my pregnancy on Facebook until I was on my ninth month for the fear of jinxing what was already so close to reality.

I woke up every day in fear. The first thing that I do the moment I wake up is to check if my baby was still moving. There was never a day that passed that I did not pray for the safety of the child that was inside of me.

And God answered.

He was in every step of my pregnancy. I prayed the Angel’s Prayer every time I injected, asking Angel Gabriel to continue protecting Santi from my killer cells. I made a promise to God that if he would give me this child, I will praise His name in any way that I can and I will make it a personal advocacy to help other women who may be in the same boat as I have been.

May 2016. Nine months after my encounter with my Angel Gabriel and 4 years after my first miscarriage, I held my son. It was surreal and yet there I was, holding the most precious thing in my life. I could not stop my tears.

The promise I made resulted to my blog, Chronicles of a Clueless APAS Mama at www.callmebalot.com where I share about my journey as well as the stories of many rainbow babies. By God’s grace, I was also made an administrator of our Facebook Support Group where we try our best to assist those who are still going through the hardships of an RID pregnancy and continue to promote awareness about the condition in the hopes of saving the lives of many unborn babies whose mothers suffer from this condition.

It is a personal dream to be able to put up a foundation to promote awareness for the condition in many parts of this country. Having handled many advocacy projects in my previous job, I have seen the power of information in changing lives. Prevention, as they say, is better than cure and one way of prevention is spreading awareness and information. However, that still remains a dream because quite surprisingly, one needs to come up with a million pesos to set up a non-profit organization. As to why, I do not understand, but that is another story for another day.

I can’t tell you that the journey of an APAS mommy will be easy. I also cannot say that all treatments will be successful. I can only tell you that we have to do what we can and let God do the rest. And if a baby is not given, know that you are complete, no matter what.

But I am praying for and with you every step of the way. May you have a rainbow baby in your arms.

If you are lost and want to know more about this condition, please visit our Facebook Support Group at www.facebook.com/groups/allaboutapasandrid.

 

 

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